Lizzy's Adventures with Aplastic Anemia
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Lizzy's Adventures with Aplastic Anemia :: Search Results
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Result 1 of 10:
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AuthorTopic: Hello everyone. (Read 985 times)
kyleandnoah
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Re: Hello everyone.
« Result #1 on Jun 3, 2005, 11:34pm »
Someone please talk to me.
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Result 2 of 10:
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AuthorTopic: Hello everyone. (Read 985 times)
kyleandnoah
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Re: Hello everyone.
« Result #2 on Jun 3, 2005, 11:34pm »
They say he has Aplastic Anemia. They dont know what casued it yet.

Noah is holding up well, but Im a total mess. Is he going to be ok? I have read some conflicting things about this. Im so scared hes going to die.

He is my baby I love him so much, I cant go on without him. I am divorced and Noah is the only family I have. I cant live without him. Its so painful the thoughts of him suffering or going through anything painful, let alone a terminal illness.

Does this disease have to be terminal? Does he have any chance of living the rest of his life normal like anyone else?

Im so scared.
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Result 3 of 10:
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AuthorTopic: Hello everyone. (Read 985 times)
kyleandnoah
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Hello everyone.
« Result #3 on May 29, 2005, 12:25pm »
My name is Kyle and my sons name is Noah. About 3 months ago we started noticing alot of brusing on Noah, he is turning 6 in a month. He also seemed to be getting sick alot. The family doctor didnt recommend bloodwork right away, but just last friday he had some done, and they rushed him to Childrens Hospital in Pittsburgh Pa. He was there for 2 days and they did a ton of tests. They are really leaning towards aplastic anemia right now but they haven't ruled anything else out. Im scared out of my mind right now and I dont know what to do or what to expect. I have read every website known today and I have learned alot about aplastic anemia.

I am scared to death, my son is the world to me, I dont know what to do. I am so worried about him.
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Result 4 of 10:
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AuthorTopic: Hello to all of you (Read 337 times)
Laurie
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Hello to all of you
« Result #4 on Jan 11, 2005, 12:36pm »
Hello, I'm Laurie, I have just found this site and I am amazed I missed it before because it seems as though for a while Lizzy and my daught Jenna were going through similar issues at the same time. What a small world it is... I see that Lizzy enjoy's UCONN basketball. My husband Jim and I are originally from CT. Anyway, Jenna was 8 when she was dx'd June of 2000 with SAA, she went through the ATG, cyclo and Pred therapy. Three months from treatment she stopped requiring platelets and ever so slowly made it back up to normal counts. It has been a year now with platelts in the 190,000 area. Jenna did not require a BMT and ATG went real well for her. Her only issue was that the pred. made her feel continuously staved! That was short lived though! You would never know today that she was as ill as she was. She plays baseball and is on the Jr.Fencing Team. For those of you whoa re going through this now, there is hope! email me any time! Laurie
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Result 5 of 10:
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AuthorTopic: mom of mason, 6, has SAA (Read 639 times)
Mandysdad
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Re: mom of mason, 6, has SAA
« Result #5 on Nov 29, 2004, 10:29am »
Our thoughts and prayers are with you.
My 9 yr old daughter is going through the same thing and almost the same time frame . never stop believing and accept all the help & support you can get.

Rich G
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Result 6 of 10:
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AuthorTopic: mom of mason, 6, has SAA (Read 639 times)
Mandysdad
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Re: mom of mason, 6, has SAA
« Result #6 on Nov 29, 2004, 10:04am »
Never stop believing
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Result 7 of 10:
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AuthorTopic: hi (Read 341 times)
Reba
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Re: hi
« Result #7 on Nov 22, 2004, 4:19am »
Hi im reba and i was 14 when they diagnosed me and in remission @ 15. Im 19 now and they diagnosed me in April again, I need a bone marrow Transplant, They are in the process of looking for a donor Im scared and not sure if i want to go through with the procedure.
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Result 8 of 10:
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AuthorTopic: From Iitaly (Read 488 times)
snowdrop
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Joined: Oct 2004
Gender: Female
Posts: 2
Location: united kingdom
Re: From Iitaly
« Result #8 on Nov 4, 2004, 4:44pm »
don't be scared.if your wifes counts, although low, are rising then it seems like the treatment has worked. your wife sounds strong and im sure she needs you to be strong. you will get through this, turn to family and friends for help if you are finding it hard to cope. there are also many support groups and organisations which can help you through this time. ive been there and i couldn't have done it wothout the help and support of my social network, i hope all goes well. hayley.xx
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you don't know unless you try


Result 9 of 10:
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AuthorTopic: any new treatments??? (Read 1,035 times)
arnold
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Re: any new treatments???
« Result #9 on Oct 19, 2004, 4:41am »
In Italy my wife had the same cure of US and in Venezuela she was treated with growing factor only (they dont treat at all AA).
Should be interesting searching in China (the medical science is a bit different)
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Result 10 of 10:
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AuthorTopic: From Iitaly (Read 488 times)
arnold
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From Iitaly
« Result #10 on Oct 19, 2004, 4:30am »
My wife had a diagnosis of AA in Caracas where we worked, we returned in Italy and she had a treatement with horse serum and ciclosporines in San Matteo Hospital in Pavia Italy, now is still with a low count (8,8 red cells and 20.000 platelets).

she returned to work and feel well.... I am scared....
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